To: Samir Sauma,Director, Office of Planning, Analysis, and Evaluation, National Institute on Aging
"We applaud recent policy changes and developments intended to include pediatric populations in research, but there remain significant challenges to the recruitment of children for clinical studies. In some cases, studies involving all ages face institutional barriers, e.g., if a hospital that treats children does not want to be liable for studies involving adults. Even where reciprocity agreements exist that allow for more effective partnering between institutions to allow for all-age studies, other logistical barriers exist such as different EHRs for adults and children, or the inability to recruit at certain sites if staff are not trained to work with heterogenous populations. It will be important for NIH to consider ways to reduce liability concerns and other logistical barriers to inclusion and enable institutions to more seamlessly partner on studies involving multiple age groups and populations."
We rely on your voice to advocate for our policy priorities. Join us to show our strength as a community that cares about endocrinology. Contact your US representatives or European Members of Parliament through our online platform. Take action and make a difference today.